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Photo: WFH Humanitarian Aid visit to Cambodia.

TREATMENT FOR ALL

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NEWS & EVENTS

WFH Global NMO training six-month impact

WFH Global NMO training six-month impact: building stronger organizations and collaborative communities

In April, the World Federation of Hemophilia (WFH) conducted its biennial Global NMO Training (GNMOT) in Madrid, Spain, bringing together national member organization (NMOs) representatives from around the world. Often referred to as the “family reunion”, GNMOT offers participants the opportunity to work on priority organizational development topics in small groups facilitated by subject matter experts, while also providing a friendly environment where attendees can connect, share, and learn from each other’s experiences.

The WBDR Data Dashboard is now live

The WBDR Data Dashboard is now live

The World Bleeding Disorders Registry (WBDR) is a global data collection platform which has been collecting standardized, patient-level data from hemophilia treatment centers (HTCs) worldwide since 2018. These data provide valuable insights into treatment practices and patient outcomes for people with hemophilia and von Willebrand disease (VWD), with an aim to support evidence-based decision making, improve clinical practices, and strengthen research and advocacy efforts. To further these goals, the WFH has now developed a WBDR Data Dashboard, which transforms the data into useful metrics and insights that can be leveraged for a wide range of purposes, such as advocacy and research.

Full WFH 2025 Comprehensive Care Summit program and session highlights announced

Full WFH 2025 Comprehensive Care Summit program and session highlights announced

Start planning your WFH 2025 Comprehensive Care Summit experience now! The World Federation of Hemophilia (WFH) is happy to share the full Summit program, featuring over 40 hours of educational content across three main tracks and more than 80 speakers from 35 countries. Using our easy navigation menu, you can filter sessions by track, day, and more to tailor your experience. Don’t miss this opportunity to dive into specialized topics—and stay tuned for more updates!

HEALTHCARE RESOURCES

GENE THERAPY REGISTRY

A prospective, observational, and longitudinal registry to collect long-term data on people with hemophilia who receive gene therapy.

About the GTR

REQUEST HUMANITARIAN AID

The WFH Humanitarian Aid Program improves access to care and treatment by providing support to emerging countries.

Request support

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

WORLD BLEEDING DISORDERS REGISTRY

The only global registry collecting standardized clinical data on people with hemophilia and people with von Willebrand disease.

Learn more

WBDR DATA DASHBOARD

Provides a comprehensive, visual overview of important WBDR data and metrics from around the world.

Learn more

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

TRAINING

The WFH empowers patient leaders and healthcare professionals worldwide by providing training programs and initiatives.

Start today

GENE THERAPY REGISTRY

A prospective, observational, and longitudinal registry to collect long-term data on people with hemophilia who receive gene therapy.

About the GTR

REQUEST HUMANITARIAN AID

The WFH Humanitarian Aid Program improves access to care and treatment by providing support to emerging countries.

Request support

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

WORLD BLEEDING DISORDERS REGISTRY

The only global registry collecting standardized clinical data on people with hemophilia and people with von Willebrand disease.

Learn more

WBDR DATA DASHBOARD

Provides a comprehensive, visual overview of important WBDR data and metrics from around the world.

Learn more

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

TRAINING

The WFH empowers patient leaders and healthcare professionals worldwide by providing training programs and initiatives.

Start today

RESOURCES FOR PWBD

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

FELLOWSHIPS AND GRANTS

For individuals and organizations to build the talent and infrastructure needed to further the WFH vision of Treatment for All.

Request fellowships and grants

PACT ADVOCACY ACADEMY

This eight-month course provides knowledge and skills that can help leaders carry out successful evidence-based advocacy campaigns.

Learn more

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

FIND AN NMO OR HTC

Looking for one of our national member organizations or a hemophilia treatment centre? Consult our global directories.

Find local support

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

FELLOWSHIPS AND GRANTS

For individuals and organizations to build the talent and infrastructure needed to further the WFH vision of Treatment for All.

Request fellowships and grants

PACT ADVOCACY ACADEMY

This eight-month course provides knowledge and skills that can help leaders carry out successful evidence-based advocacy campaigns.

Learn more

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

FIND AN NMO OR HTC

Looking for one of our national member organizations or a hemophilia treatment centre? Consult our global directories.

Find local support

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. 

The WFH eLearning platform is your one-stop-shop for all your educational resource needs.
With just a few clicks, you can find everything you need on hemophilia and other inherited bleeding disorders.

KEY RESOURCES

WFH 2023 Comprehensive Care Summit

The global summit will encompass the biennial International WFH Musculoskeletal (MSK) Congress, and will include MSK, medical and multi-disciplinary tracks—all centering around people with bleeding disorders.

STAY CONNECTED!

Membership

Get involved by becoming a member today.

Haemophilia is the official scientific journal of the WFH.

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STAY CONNECTED!

Membership

Get involved by becoming a member today.

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